National information & advice services for children and young people with SEND - Family Hub

December 28, 2024

Sense

National Organisation supporting deafblind & sensory impaired children, adults, their families & carers. Phone: 0300 330 9256 (9am to 5pm, Monday to Friday) Request a ...

December 28, 2024

Mencap

A UK charity for people with a learning disability and their families. Learning Disability Helpline: 0808 808 1111 (10am to 3pm, Monday to Friday) Website: ...

August 20, 2023

Information, Advice and Support Services Network (IASS Network)

SENDIAS services can support children, young people and their families on a range of issues including: school exclusions; EHC Needs Assessments; supporting conversations with a ...

May 8, 2025

IPSEA – Independent Parental Special Education Advice

IPSEA is an independent national advice and support centre which offers free and independent legal advice and support in England and Wales. IPSEA deals with ...

December 28, 2024

InDependent Diabetes Trust

National Organisation for people living with diabetes run by people living with diabetes. Helpline: 01604 622837 (9.30am to 4.30pm, Monday to Fridays - does not ...

December 28, 2024

Huntington’s Disease Association

National Organisation, giving support and advice to families/carers and people with Huntington’s Disease, as well as health care professionals. Thier website also has lots of ...

December 28, 2024

Child Growth Foundation

Organisation that supports children, adults and families affected by rare growth conditions. Telephone support line: 0208 995 0257 Website: Home - Child Growth Foundation

December 28, 2024

Haemophilia Society

National Organisation that provides info & advice to sufferers and their families. Helpline: 020 7939 0780 (9am to 5pm Mon - Friday) Website: The Haemophilia ...

December 28, 2024

Fragile X Society

The Fragile X Society aims to improve the lives of those affected by Fragile X and associated conditions by providing information and continued support to ...