National information & advice services for children and young people with SEND - Family Hub

December 28, 2024

InDependent Diabetes Trust

National Organisation for people living with diabetes run by people living with diabetes. Helpline: 01604 622837 (9.30am to 4.30pm, Monday to Fridays - does not ...

December 28, 2024

Huntington’s Disease Association

National Organisation, giving support and advice to families/carers and people with Huntington’s Disease, as well as health care professionals. Thier website also has lots of ...

December 28, 2024

Child Growth Foundation

Organisation that supports children, adults and families affected by rare growth conditions. Telephone support line: 0208 995 0257 Website: Home - Child Growth Foundation

December 28, 2024

Haemophilia Society

National Organisation that provides info & advice to sufferers and their families. Helpline: 020 7939 0780 (9am to 5pm Mon - Friday) Website: The Haemophilia ...

December 28, 2024

Fragile X Society

The Fragile X Society aims to improve the lives of those affected by Fragile X and associated conditions by providing information and continued support to ...

December 28, 2024

Epilepsy Society

National Organisation that is committed to increasing the awareness and understanding of epilepsy both among people whose lives are directly affected by the condition, and ...

December 28, 2024

Epilepsy Action

National Organisation that provides support, information, training, assessment, freephone helpline, publications & comprehensive website. Helpline: 0808 800 5050 (Monday to Friday: 8.30am to 5pm and ...

December 28, 2024

Education and Resources for Improving Childhood Continence (ERIC)

National charity dedicated to improving children’s bowel and bladder health. Free helpline: 0808 169 9949 (Mon to Thur, 10am - 2pm) Website: Home - ERIC

December 28, 2024

Teach Me Too

Teach Me Too provides resources for early years and KS1. It covers Literacy, Maths, the Wider Curriculum, Exploring Language and Language through Play. These resources ...